Sporadic Creutzfeldt-Jakob disease (CJD)

After talks with my step dad, I feel as if it is now time to make you aware of what happened to my lovely, kind mum who I miss every single day.

I lost my lovely mum early December. This is something that even to this day I find hard to cope with. Writing this is so hard. I am only 35 years old. I was 34 when she died. I have lost both my biological parents. I know I am not the only one that this has happened to but it is still hard to deal with. I daresay losing your parents whatever age you are is a very hard thing to deal with.

What my mum died from was a huge surprise. I haven’t heard of it for many years. Not since the big issue to do with contaminated meat years ago. Creutzfeldt-Jakob disease, CJD. My mum died of Sporadic CJD. From what I have been told and have read, there isn’t a known cause for this to happen. It is very rare too..

“approximately one person in every million develops sporadic CJD per year” – http://www.prion.ucl.ac.uk/clinic-services/information/sporadic-prion-disease/

One person in every million..and that one person was my mum.

I am not too sure whether that has helped me deal with the whole situation or not. The fact that there isn’t any cure probably has.

It took about six weeks for it do kill her. Not long at all.

I have gone through every emotion. I have to live my life now…I have been doing. I still have my moments and I probably will do for forever. I love my mum very very much.I am not writing this for sympathy. I am writing this to make you aware. I certainly didn’t know that Sporadic CJD even existed. I wonder how many cases go undiagnosed..I hope that making you all aware of this and other forms of CJD – visit http://www.prion.ucl.ac.uk/clinic-services/information/ for more information.

If you are able to donate to http://www.cjdsupport.net/ then that would be great. They have been a good support to me in answering my questions and basically listening to me.

 

6 comments

    • Kelly Wiffin says:

      Thank you. I will and I do. I do try and be positive, mostly, I have had 34 fantastic years with her in my life.

  1. MotherGeek says:

    Hugs to you xx
    I had no idea you could get CJD like this either. I was 32 when I lost my mum, 23 when I lost my dad. It’s not easy but they would want us to carry on. They may not be here any more but they live on in us, our memories and the stories we share with our kids. Xx

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