Sporadic Creutzfeldt-Jakob disease (CJD)

After talks with my step dad, I feel as if it is now time to make you aware of what happened to my lovely, kind mum who I miss every single day.

I lost my lovely mum early December. This is something that even to this day I find hard to cope with. Writing this is so hard. I am only 35 years old. I was 34 when she died. I have lost both my biological parents. I know I am not the only one that this has happened to but it is still hard to deal with. I daresay losing your parents whatever age you are is a very hard thing to deal with.

What my mum died from was a huge surprise. I haven’t heard of it for many years. Not since the big issue to do with contaminated meat years ago. Creutzfeldt-Jakob disease, CJD. My mum died of Sporadic CJD. From what I have been told and have read, there isn’t a known cause for this to happen. It is very rare too..

“approximately one person in every million develops sporadic CJD per year” – http://www.prion.ucl.ac.uk/clinic-services/information/sporadic-prion-disease/

One person in every million..and that one person was my mum.

I am not too sure whether that has helped me deal with the whole situation or not. The fact that there isn’t any cure probably has.

It took about six weeks for it do kill her. Not long at all.

I have gone through every emotion. I have to live my life now…I have been doing. I still have my moments and I probably will do for forever. I love my mum very very much.I am not writing this for sympathy. I am writing this to make you aware. I certainly didn’t know that Sporadic CJD even existed. I wonder how many cases go undiagnosed..I hope that making you all aware of this and other forms of CJD – visit http://www.prion.ucl.ac.uk/clinic-services/information/ for more information.

If you are able to donate to http://www.cjdsupport.net/ then that would be great. They have been a good support to me in answering my questions and basically listening to me.

 

The Sherwood, Preston, Sizzling Pubs – A review

We recently went to The Sherwood in Fulwood, Preston. It is a Sizzling pubs pub which has recently updated it’s menu.

To start, I had Beer-Battered Salt and Pepper Mushrooms. I found these quite oily. Nice but super unhealthy! The other half had nachos…not sure what happened with these but these were oily too. Way too oily. Nice but oily. Master A had garlic bread. This was OK. He enjoyed it. Miss A had soup – she said it was nice. I think that if they went a bit easy with the oil, it would of been the perfect start to our meals!

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Being vegetarian, we don’t have much to choose from usually. There were, however, quite a few vegetarian options. I had a Jerk Bean Burger this was rather good! I prefer bean burgers to vegetable burgers so I was quite happy. My other half had the Sweet Potato, Lentil & Spinach Dhansak. He enjoyed his.

Both children had pizza with veggie dippers. Now veggie dippers were not what I was expecting. The veggie dippers were actually salad. My kids don’t like salad, they make poor vegetarians I know. I was expecting veggie dippers, like cooked and chopped vegetables coated with breadcrumbs or like the Quorn dippers. My other half thought the same as well. So we were quite disappointed with the kids meal as it mean’t that the children only had pizza to eat. I would like to make a suggestion here and perhaps have an option of the pizza with either baked beans or peas or sweetcorn..perhaps with chips or wedges or something…or even with the veggie fingers that we were expecting.

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Dessert was interesting. My other half had the Sticky Toffee Pudding which he enjoyed. The kids had a lolly each. My dessert..I opted for the Strawberry and Cream Sundae. However this wasn’t what I got. I got a red berry sundae which wasn’t on the menu. I didn’t ask for a replacement as I thought the strawberries were at the bottom, I was quite disappointed to discover that there were no strawberries at all in my sundae. It was pleasant enough but the berries/redcurrants made the sundae a bit sour. I did ask about the strawberries and they said that they did have them available and wasn’t sure why it happened. Very odd.

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The Sherwood had colouring pages and crayons for the kids, this is always handy. Keeping the children busy while they were waiting for food is so important!

Overall the food was good. If we were in the area, we would definitely go back. It is the kind of place where kids felt welcome and also it was relaxing, busy but relaxing. Now we know that some of the food is quite oily, we can try out the other items on the menu.

To find out more about The Sherwood, visit http://www.sizzlingpubs.co.uk/findapub/northwest/thesherwoodfulwood

We dined at The Sherwood free of charge in exchange for this review. 

An update – Some good, some bad. That’s life!

I haven’t blogged properly for months. I have done a few review posts but no personal stuff in a long time. There are a few reasons for this, all will be explained here. Life has been very challenging but also very rewarding.

The first thing that has happened is that I lost my dear mum. She died in December. I am still not over it, I doubt I ever will be. I think of her every day. I will always miss her. I won’t go into detail on what happened as I haven’t asked the rest of the family. I don’t think it is the right time to ask.

The second thing is that our lovely dog Tyson died in March. Again, I miss him a lot. He was a lovely dog who was kind, affectionate and our first dog. Tilly is doing well being on her own, I think. She is getting lots of attention! Tyson was 12! He had so many things go wrong in the last few years, he did so well to last until then! Will always love him.

I think that is it for the bad bits..but as you can imagine, they are life changing.

There is some excellent news by the way. We have found out that Master A does not have NF1! He has had a genetics test done, which is 95% accurate and it was negative! I am not too sure why he has the cafe au lait marks. If they get bigger or if he gets more, I will make another appointment. I have found another condition that it could be, Legius Syndrome. I am not going to ask for another referral to get it tested just yet. There are no health risks like NF1 attached to this and from what I have read about it, it can only affect the learning.

Both Miss A and Master A are well. Mostly! They have had a few things to deal with but nothing serious. Master A is starting to talk a little bit more which is awesome! Miss A is doing so well with ice skating and dancing!

So that is all I am going to put on here as I intend to blog regularly now. Fingers crossed I can do this!

Turtles Half Shell Heroes Mutant Loader review

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Master A was sent a Teenage Mutant Ninja Turtles Half Shell Heroes Mutant Loader to test and I can safely say that this toy has been very well received and well played with since we have got it. Miss A has played with it as well. She likes it too! It is so nice that they both play with each other’s toys! I often see Master A play with Miss A’s dolls!

I am so pleased that Teenage Mutant Ninja Turtles are still around! They were a big thing when I was little and they seem to be a big thing now too! I haven’t shown Master A the programme yet, I feel like he is a little bit young for it but in time I will and I can see that it being a big thing for him. I know I enjoyed it when I was watching it.

I often see Master A playing with the toy and he likes scooping up quite a few of his other toys in the vehicle as well as pushing it across the floor. It goes quite fast on laminate flooring! The size of the vehicle is perfect for Master A. Perfect for three year olds and over! Now he seems to want more Teenage Mutant Ninja Turtles toys! I can see it becoming a big thing!

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For £19.99, the toy is definitely good value as it is a toy that definitely Master A will play with for a long time. He loves it. I think that love will also grow with age as when he starts to watch the programme, I can see him loving it!

I love the fact that Mikey has a seat on the side of the vehicle, so does Master A!

To find out about the Teenage Mutant Ninja Turtles Half Shell Heroes Mutant Loader and the rest of the range visit http://www.flairplc.co.uk

Chillfactor Pull Pops review

We were sent a set of Chillfactor Pull Pops to review. Miss A was so excited when she saw these. She loves ice lollies and so does Master A.

I was rather impressed with the idea of letting Miss A make her own lollies, but she found the Chillfactor Pull Pops impossible to do, they were just too hard for her to pull the liquid up. I took over, she was a little bit disappointed but I told her that we would keep on trying and she will eventually get the hang of it. She was happy with this and it means that this product will be in our lives for quite some time as even though Miss A couldn’t do her own ice lollies, she had fun watching me do them.

Miss A kept on asking if they were ready yet..she got so excited when they were. What she didn’t realise, I had already done one for Master A so they both had an ice lolly. An ice lolly that kept them happy for quite a long time!

Even though Miss A couldn’t do them, I still am happy with the product, it made both children happy, this makes me happy.

Look at their faces!

Master A really enjoyed his ice lolly. I think we will have lots of fun with being more creative with the Chillfactor Pull Pops in the next few months, when the weather gets warmer. It is still a little bit cold out there to be eating ice lollies, I think.

To find out more about the Chillfactor Pull Pops, visit www.character-online.co.uk